[Asis-l] IRB and ASIST? - Changes ro rules re: research w/ Human Subjects

[Dick Hill]

[Forwarded at request of Linda C. Smith and Gary to reach US-based
researchers involved in studies involving human subjects]

Linda

From: Bill Kules <kules at cua.edu>
Subject: Proposed changes to human subjects protection rules - please sign
our letter and comment

Dear colleagues,
I'm writing to ask you, as a member of the HCI community, to comment on and
sign a letter responding to proposed changes in the human subject protection
rules for research. The URL of our draft letter and a link to the full
proposal are at:
http://goo.gl/N3zCG (please respond by Oct 5)
Background: The Department of Health and Human Services (HHS) is proposing
to make changes to the rules for human subjects research. We (an informal
group of HCI researchers) have developed a letter to support the many
positive elements of the proposal. This letter focuses on issues that are
likely to affect most HCI research: The proposed "Excused" research
category, changes to the "Expedited Review" category, changes to the
informed consent rules, and new rules about data security and information
protection. We hope to gather a number of signatures from the HCI community
to ensure that our voices are heard as they move forward.
In addition to signing the letter, I encourage you to provide your own
comments through their response page. Please pass this along to others that
may be interested, too.
Thanks for considering this,
Bill
--
"Decide, do, reflect, repeat..."
Bill Kules, Ph.D.
Assistant Professor, The Catholic University of America,
    School of Library and Information Science http://faculty.cua.edu/kules
(301) 755-7982 voice
(240) 599-7671 fax
kules at cua.edu



________________________________________
From: Marchionini, Gary [gary at ils.unc.edu]
Sent: Tuesday, September 27, 2011 2:12 PM
To: Smith, Linda C
Subject: RE: IRB and ASIST?

I would prefer it go to all ASIST members, but if someone objects to
broadcasting that widely, we could limit to the two sigs
g

Gary Marchionini, PhD
Dean and Cary C. Boshamer Professor
100 Manning Hall
School of Information and Library Science Chapel Hill, NC  27599 "esse quam
videri"....To be rather than to seem.  North Carolina State motto


-----Original Message-----
From: Smith, Linda C [mailto:lcsmith at illinois.edu]
Sent: Tuesday, September 27, 2011 3:09 PM
To: Marchionini, Gary
Cc: Bill Kules (kules at cua.edu)
Subject: RE: IRB and ASIST?

So do you want to post this to ASIS-L and/or individual SIG lists?  I agree
that this is an issue relevnat to researchers in ASIST.  Our Vice Chancellor
for Research at UIUC is actively seeking input to forward on these issues
and I imagine that is true on many university campuses.

Linda

________________________________________
From: Marchionini, Gary [gary at ils.unc.edu]
Sent: Tuesday, September 27, 2011 9:18 AM
To: Smith, Linda C
Cc: Bill Kules (kules at cua.edu); Marchionini, Gary
Subject: FW: IRB and ASIST?

Linda, Bill Kules wonders whether ASIST is willing to encourage members to
support the letter to HHS on IRB changes.  I have signed as an individual
researcher and have encouraged my faculty to consider signing.  This needs
to be done in the coming week so perhaps a message to ASIST listserv asking
people to read it would be in order.  I suppose sending only to HCI and USE
SIGS might be an alternative.
Best,
Gary




Gary Marchionini, PhD
Dean and Cary C. Boshamer Professor
100 Manning Hall
School of Information and Library Science Chapel Hill, NC  27599 "esse quam
videri"....To be rather than to seem.  North Carolina State motto


-----Original Message-----
From: wmkules at gmail.com [mailto:wmkules at gmail.com] On Behalf Of Bill Kules
Sent: Tuesday, September 27, 2011 10:03 AM
To: Marchionini, Gary
Subject: Re: Thank you for manuscript review

Hi Gary,

If you could put me in touch with Linda that would be helpful. I've attached
an email that I'm sending around. Feel free to pass it along to anyone who
you think would be interested.

Thanks,
Bill
---------- Forwarded message ----------
From: Bill Kules <kules at cua.edu>
Subject: Proposed changes to human subjects protection rules - please sign
our letter and comment


Dear colleagues,

I'm writing to ask you, as a member of the HCI community, to comment on and
sign a letter responding to proposed changes in the human subject protection
rules for research. The URL of our draft letter and a link to the full
proposal are at:

http://goo.gl/N3zCG (please respond by Oct 5)

Background: The Department of Health and Human Services (HHS) is proposing
to make changes to the rules for human subjects research. We (an informal
group of HCI researchers) have developed a letter to support the many
positive elements of the proposal. This letter focuses on issues that are
likely to affect most HCI research: The proposed "Excused" research
category, changes to the "Expedited Review" category, changes to the
informed consent rules, and new rules about data security and information
protection. We hope to gather a number of signatures from the HCI community
to ensure that our voices are heard as they move forward.

In addition to signing the letter, I encourage you to provide your own
comments through their response page. Please pass this along to others that
may be interested, too.

Thanks for considering this,
Bill
--
"Decide, do, reflect, repeat..."
Bill Kules, Ph.D.
Assistant Professor, The Catholic University of America,
    School of Library and Information Science http://faculty.cua.edu/kules
(301) 755-7982 voice
(240) 599-7671 fax
kules at cua.edu



On Sun, Sep 18, 2011 at 4:02 PM, Marchionini, Gary <gary at ils.unc.edu> wrote:
> Hi Bill,I asked around SILS (Diane Kelly is on the campus IRB) but
> nobody seems to know much.  I do not know of any ASIST chatter.  I
> would be happy to facilitate if I understood the issues.  Should I put
> you or Marti in touch with Linda Smith?
>
> g
>
>
>
> From: wmkules at gmail.com [mailto:wmkules at gmail.com] On Behalf Of Bill
> Kules
> Sent: Sunday, September 18, 2011 4:00 PM
> To: Marchionini, Gary
> Subject: Re: Thank you for manuscript review
>
>
>
> Hi Gary,
>
> You're quite welcome. I think it will be a nice addition to the series.
>
> By the way have you seen my email on the HCI response to the proposed
> changes to the IRB process? Marti Hearst is leading an effort to
> provide comments from the HCI community and I'm wondering if you know
> of similar efforts in ASIST.
>
> Bill
> --
> "Decide, do, reflect, repeat..."
> Bill Kules, Ph.D.
> Assistant Professor, The Catholic University of America, School of
> Library and Information Science http://faculty.cua.edu/kules
> (301) 755-7982 voice
> (240) 599-7671 fax
> kules at cua.edu
>
> On Sep 17, 2011 10:56 AM, "Marchionini, Gary" <gary at ils.unc.edu> wrote:
>> Bill, thanks very much for your thoughtful comments on Max's lecture.
>> I am sure that the work will benefit from your commentary.
>> Looking forward to seeing you at HCIR in MV.
>> gary
>>
>> Gary Marchionini, PhD
>> Dean and Cary C. Boshamer Professor
>> 100 Manning Hall
>> School of Information and Library Science Chapel Hill, NC 27599 "esse
>> quam videri"....To be rather than to seem. North Carolina State motto
>>



--
"Decide, do, reflect, repeat..."
Bill Kules, Ph.D.
Assistant Professor, The Catholic University of America,
    School of Library and Information Science http://faculty.cua.edu/kules
(301) 755-7982 voice
(240) 599-7671 fax
kules at cua.edu